• Hashtag Details
    #eds instagram hashtag, #eds instagram tag photos in the page.
    @ @throughthefibrofog instagram profile

    (@throughthefibrofog)

    New blog post! Continuing the ‘my experience of . . .’ series - it’s my experience of a tilt test. Or three tilt tests to be exact! Hope it is helpful to those who may have one upcoming and aren’t sure what to expect. Link in #tilttest #raynauds #mcad #potsie #fibromyalgia #posturalorthostatictachycardia #dysautonomia #lowhistamine #fatigue #eds #autonomicdysfunction #vestibularmigraine #migraine #dizzy #spoonie #pots #headache #mcas #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #vertigo

    • 0
    • 0
    • 26/04/2018
    @ @simplysaranna instagram profile

    (@simplysaranna)

    I little insight into my life with Ehlers Danlos Syndrome. Due to my genetic and faulty connective tissues my joints are very unstable, they dislocate, damage easily and fatigue very quickly. I’m also in constant pain. These are my ‘going out’ wrist braces. I have my home ones but these are my out and about set. They help stabilise my wrist joints and make life so much better. I usually wear these with my ring splints but this photo is all about the bracing. This photo is from art project I did last year, so expect more to come 😊 @ehlers.danlos #ehlersdanlos #invisibleillness #art #pacing #blackandwhite #invisibledisability #disability #dysautonomia #blackandwhitephotography #eds #splints #bracing #braces #chronicillness #ehlersdanlossyndrome #positivity #nevergiveup #zebradazzle

    • 1
    • 0
    • 26/04/2018
    @ @eduasportin instagram profile

    (@eduasportin)

    Kur shënon @marcelotwelve, fitoren e Real Madridit quajeni të kryer! 🔥 Kjo ka ndodhur në 32 nga 33 ndeshjet e fundit, kur braziliani ka gjetur golin. 💪 #realmadrid #eds #marcelo #eduasportin

    • 104
    • 0
    • 26/04/2018
    @ @casper_friendly_service_dog instagram profile

    (@casper_friendly_service_dog)

    👸🏼I can’t believe it’s been a whole year since I brought Casper home! This fluffy monster has changed my life in so many ways, and I’m furever grateful to Heritage Service Dogs for granting me such an amazing #servicedogintraining #medicalalertdog #standardpoodle #ptsdservicedog #spoo #rawfood #disability #eds #mobilityassistancedog #sdit #standardpoodlesofinstagram #servicedogteam #standardpoodleservicedog #servicedog #servicedogtraining #pots #ehlersdanlossyndrome #rawfed #rawdogfood #disabled

    • 17
    • 1
    • 26/04/2018
    @ @nirak067 instagram profile

    (@nirak067)

    Even though I have to adapt my workout, it's so fun when everything works. Stabilizes, adjusts and adjusts but it moves forward #warrioratheart #fightingspirit #zebrastrong #zebrapower #forlife #hardtimes #eds #zebrawarrior #fitness

    • 2
    • 0
    • 26/04/2018
    @ @courtney.smellink instagram profile

    (@courtney.smellink)

    Cardio time, I was working this morning and could literally feel myself getting more and more anxious and worked up. Then it occurred to me that I had been so busy doing yard work this week, then working yesterday, that I hadn't been working out! That'll do it #heds #keto #foodismedicine #mentalhealthmatters #ketogenicdiet #painrelief #ehlersdanlossyndrome #edsathletes #ketoladies #eds #ketodiet

    • 7
    • 1
    • 26/04/2018
    @ @jmanbay instagram profile

    (@jmanbay)

    Apollo rocking his new zebra bandana to help raise awareness of Ehlers-Danlos Syndrome in the UK. It's a very complicated yet more and more common condition than you maybe think. He's a dog and I work in a shop so neither of the two of us understand it very well as such but we try to understand more daily as @smillie_shaped suffers from this very condition. Have a little Google if you wish to find out #hiddenedinburgh #edinburgh #weegiepupabroad #uk #zebra #edinburghbloggers #scotland #dogsofinstagram #samoyedlovers #eds #puppy #apollo #bestboy #toocute #pupsofinstagram #medicalzebra #samoyed #edinburghlife

    • 4
    • 0
    • 26/04/2018
    @ @thelaughingstoma instagram profile

    (@thelaughingstoma)

    When the weather is nice and your new PCP is in the same building as a Starbucks... 😉 My previous PCP no longer accepted my insurance as of March, so I had to switch to a different one. I had my first appointment with her today, and she was so sweet! Fun fact: My grandmother (‘Sitou’) is Lebanese, and so is my PCP, so we got to exchange some Arabic phrases! #invisibleillness #zebrastrong #chronicallymotivated #ostomy #asthma #mastcellactivationsyndrome #endowarrior #stoma #dysautonomia #eds #spoonie #orthostatichypotension #pots #klippelfeilsyndrome #chronicillness #ileostomy #ostomyawareness #ehlersdanlossyndrome #girlswithguts #ostomate #endometriosis

    • 57
    • 1
    • 26/04/2018
    @ @poprouge instagram profile

    (@poprouge)

    Being brutally honest. Both photos are no makeup. This is what the chronic pain of EDS does to me. The brace is because I woke up with my neck and hips killing me. Right knee is braced as well. The bracing supports my joints to help them heal. This morning and a recent good day. #pain #eds #faceofpain

    • 1
    • 0
    • 26/04/2018
    @ @elementsdancespace instagram profile

    (@elementsdancespace)

    The month is almost over! Don’t forget to ENTER into our raffle to win a $50 GIFT CARD to @homebrewedbar 😎☕️ #danceinpasadena #elementsdance #elementsdancespace #universalblankcanvas #fitnessinpasadena #elements #yourspaceislimitless #eds #pasadena

    • 22
    • 0
    • 26/04/2018
    @ @emmmkennedy instagram profile

    (@emmmkennedy)

    Tickets for EDS' YEAR END SHOW "THIS IS ME" are ready to go!!!! 😀🕺💃🕺💃💙💙💙 #thisisme #elitedancestation #competitiveteams #eds #yearendshow #dancefun

    • 8
    • 0
    • 26/04/2018
    @ @rolling_stoned_mag instagram profile

    (@rolling_stoned_mag)

    The entourage effect helps control More you know ... or “W” It happens with the layering of different types of cannabis different methods of administration. ... You need to keep filling your tank up with and when you have chronic conditions or you are healing from a chronic injury / event. ... I am Still light sensitive but I’m feeling so much better. I was able to sit outside and watch the beautiful Sunset. ✨ ... Thank you you very much from the bottom my heart to @farmerdawni Gave me her special stock and @cumuluscandies for helping to medicate me with these sugar-free candies. So timely And important in my recovery as my has reared its ugly head. ... I can medicate with a few of these candies anywhere anytime but my absolute favorite is in hot tea. Flavor like you’ve never had before. I am on .... #witchesofinstagram #callingallwitches #cbd #thc #cannadifyi🌈 #mthfr #dysautonomia #theentourageeffect #eds #hypoglycemia #chillin #wofw #repost #nug #cumulus9 #witchyweedwoman #witchesofweedwick #ddd #suckme #ladydizebra

    • 11
    • 0
    • 26/04/2018
    @ @sed_warrior instagram profile

    (@sed_warrior)

    Les beaux jours sont de retours et je suis tellement heureuse à l’idée d’être bientôt en été. L’hivers est la pire saison pour moi à cause de l’humidité et du froid, mes articulations sont toutes rouillées, le manque de chaleur induit une perte de tonus et favorise les blessures, un peu comme chez un grand sportif qui ne se serait pas échauffé avant de faire sa compétition, sauf que bon.. je suis loin d’être une grande sportive! Le soleil et la chaleur ça fait du bien au corps et aussi au moral, et c’est aussi synonyme de grandes vacances! Je vais passer une partie de mes grandes vacances à l’hôpital, je suis un peu inquiète par rapport à ça mais j’ai encore le temps de vous en parler d’ici là, je préfère ne pas me tourmenter d’avance. Je vais aussi partir dans deux pays différents (Espagne et Grèce), il me tarde de vous faire plein de photos et de vous partager ma joie de vivre. Bon pour l’instant je suis loin d’être en vacances, il me reste encore quelques heures de cours et dans 2 semaines les partiels, je passe 6 matières au total, elles durent environ 2h chacune et je dois apprendre l’intégralité des chapitres de ces 6 derniers mois, ça va pas être de la tarte mais je commence à être habituée et j’aime relever des défis! Une grosse pensée à tous les étudiants qui passent les partiels, les lycéens qui préparent le bac, les collégiens qui préparent le brevet, « You can do it ». 👊🏼 #fibromyalgie #handicap #ehlersdanlos #pain #chronic #spoonielife #handicapinvisible #hypermobilitysyndrome #ehlersdanloswarrior #edsawareness #disability #fatigue #dysautonomia #fighter #eds #fauteuilroulant #maladie #warrior #maladierare #syndromeehlersdanlos #spoonie #motivation #chronicillness #ehlersdanlossyndrome #disabilities #hopital #maladieorpheline #hypermobility #disabled #chronique

    • 47
    • 1
    • 26/04/2018
    @ @thegirlwhocanteat instagram profile

    (@thegirlwhocanteat)

    and had a lovely facial by @naturalesthetics truly such a lovely and amazing experience, if any of you are in the Cary area I highly suggest her if you want a nice relaxing facial or another beauty treatment. #nomakeup #ehlersdanlos #crohnsdisease #skincare #nontoxicmakeup #tubie #gastroparesis #facial #ibd #thegirlwhocanteat #eds #eyelashextensions #greenbeauty #nontoxicbeauty #crohns #gp #nofilter #lashextensions

    • 37
    • 5
    • 26/04/2018
    @ @najmlodsza instagram profile

    (@najmlodsza)

    Przesyłamy dużo energii i buziaków z Krakowa !!!! @😍😍😘👌egurroladancestudio #eds #dance #instructor #dancelife

    • 24
    • 0
    • 26/04/2018
    @ @sj_laws instagram profile

    (@sj_laws)

    If you had told me 18 months ago that I’d visit 20+ new destinations plus a return to the big 🍎 before I turn 27, I would’ve ignored you and carried on with one of my ‘great’ stories. But here I am waiting for a flight home, hoping Mum can get the pasta sauce out of my white top. Life often feels like series of battles and I don’t always see the point. I don’t feel like I’ve never measured myself in spoons and I’d rather not have my All I know is that life is far to long to not see beauty, drink good wine and sparkle, even whilst my body and mind become more and more unreliable. #pain #invisibleillness #carpediem #travel #love #courage #chronicpain #eds #wanderlust #flyaway #warrior #whatwillbewillbe #italy #flyingsolo #itsoknottobeok #noregrets #ehlersdanlossyndrome #zebrastripes #bucketlist #fomo

    • 8
    • 0
    • 26/04/2018
    @ @chronicallyjadzia instagram profile

    (@chronicallyjadzia)

    Photo of my Rory girl since I dont have another photo to post on here. I had a consultation at Hangar clinic for a bracing and orthotic evaluation yesterday. The orthotist was amazing and knew a lot about Ehlers-Danlos Syndrome. He also did mot want to over-brace me, which I appreciated. He suggested that I tall to my Primary about getting an MRI to check on my joints and how loose my connective tissue is, and also recommended a couple diffferent bracing options to help with stability. Overall it was a great #heds #invisibleillness #wheelchair #gastroparesis #zebra #ibs #chronicillnessproblems #dysautonomia #disability #powerassist #eds #chronicallyjadzia #tmj #spoonie #pots #chronicillness #mcas

    • 13
    • 0
    • 26/04/2018